Tuesday, June 16, 2009
Early Morning Update
Thanks for the blog update, Amy. It's 3:00am and my "wishbones" woke me up so I thought I'd stay up long enough to drop you all a little note. To all of you blog readers, thanks for keeping Rick and I in your thoughts and prayers...we can feel the love surrounding us.
This chemo is quite different than anything I've had before. Not that it's so terrible, it's just very different. The first week is a quick dose of a drug that I barely even know I've gotten. By week 2 however, the dose is longer, stronger and they've added 2 additional drugs. At the beginning of week 2 I don't feel much different than fatigued, but by this time in the treatment, I've really got to watch the low grade fevers, ACHY hips, pelvis, knees, thighs (they gave me a shot so my body would over produce bone marrow to keep me healthy...I think it's working), nausea, loss of appetite (finally a new diet plan) and just an overall feeling of not feeling like my self. I've done a lot more resting than usual and it seems to be helping.
I've gotten used to the bald head (though I still have follicletis - an inflammation of my hair follicles) so my scalp has a little rash on it. I'm getting more and more accustomed. Now I don't scream when I see my reflection in a mirror or window or a glass of water :)
Today (technically yesterday since it's now 3:15am on Tuesday), I got an incredible gift of kindness. As you all know, I am so grateful for the outpouring of love and support I get from so many of you. From dear old friends, to some I only know through the blog, to some of you I've never met. Here's what happened: About a month ago I received the most incredible flower arrangement I had ever seen from a dear friend of Amy and Angie's, named Sabrina. It was sent to me from the Tulalip Casino's new flower shop, Salal Floral (I didn't even know they had one there). When Sabrina ordered the flowers she shared the "story of our family" to the shop owner and shared how much she loved our family over the years and what great people she thought we were. Long story short, they decided to "adopt" us and I got an e-mail from the flower shop saying they would like to send me a fresh bouquet twice a month as a kind gesture in hopes that it would keep our spirits high. Oh, my goodness. Me and fresh flowers? Are you kidding? I'm going to be elated. They will bring them every other Thursday...Am I blessed or what?
We were hoping Dave and Val would be moving in this week but it looks like there is a little glitch in the 3rd parties money. Too much feet dragging. I believe it's all going to work out, they just need our good thoughts to help push everything in the right direction. I guess it will be a little longer before the "partying starts"...Just kidding, our partying needs to be during the daylight. Otherwise, we've all fallen asleep in our chairs or on the couch. Don't worry about stopping by and interrupting our parties...you might just be waking us up :)
Well, now that's it's 3:30 and my tylenol has kicked in a little, I think I'll wrap my hips back up with a heating pad and try the sleeping "thing" again.
We're hoping this week Jake learns something about his job. They re posted a bunch of them and I think he applied for all the was qualified for. School is officially out on Wednesday, so let's hope they learn something soon. Megan has the rest of this week off then it's back to school again for her. I think the kids are going to spend a few days over at Desert Aire for relaxation and sun before Megan has to go back for her last set of classes. Once summer quarter is over, it all just hands on stuff for her. 3 months at 3 different sites. Then...she's done :) It's been a long journey, but well worth it.
Angie is officially out tomorrow so she'll join me at my next "result" appointment next Tuesday. It's nice when summer vacation comes around. The kids have more opportunities to join us at appointments and ask questions. It's also nice just to spend quality snuggling time with them. They can crawl right into the hospital bed during the infusion and no one cares.
Sorry to say this, but Amy doesn't just "get time off". She's got a great job and they will let her take time off and make it up as she needs to, but like the other 2 kids....she doesn't have an assigned "summer off". She does however join me at lots of appointments and I'm happy they give her the freedom to do that when needed.
Vickie is taking me on Monday for my PET scan then we're going to a "get beautiful" class that the University of Washington puts on for cancer patients who've lost their hair. We should have a great time. And you never know. I might come home with a cute blonde wig?
Ok, enough blabbering...time to head to bed. Someone (ME) needs their beauty sleep desperately. I should have been in be by 7:30 tonight :)
Dreaming with achy hip bones...which are connected to my pelvis bone, connected to my thigh bones, connected to my knee bone, connected...well you get the picture :)
Posted by Doreen at 3:07 AM