Tuesday, March 31, 2009
As for me. Chemo went great, but I tested positive for RSV again so I walked around in my mask all day. They are going to do a nasal wash and a swab of my throat each week until I test negative. Apparently this isn't something to play with. I'm actually feeling better but they aren't taking any chances.
Now, I need to grab a little bite to eat (some leftover Shepard's Pie from last night....it was delicious) then head off to bed. I'm pooped.
Thanks for all the prayers and well wishes,
Sunday, March 29, 2009
It's been another uneventful weekend. Just working on getting better. This coming week is a big one. I start my chemo treatments again and Rick has his first scan since we started this new chemo regime. Tuesday will be a long, but very important day. He has his scan in the morning and the results late in the day. My chemo doesn't start until 10:00ish so I hope I'm still awake when we meet with his doctor. Angie is going with us (it's her spring break) so she can be our other set of ears and the official note taker. It's so nice to have someone else at our appointments on days like this. Having one of the kids is always extra special.
I'm now hooked up to Facebook and I've become a little addicted to it. I talk to people I haven't seen or heard from in years. I also have a virtual pet that I feed, and bathe, and walk. It's pretty fun when you have the time to spare.
I don't know about the rest of you, but I'm starting to get "basketballed out". I usually love March Madness....but I'm having a little March Madness of my own. The sound of the squeaky shoes on the gym floor, the cheerleaders chanting, the refs whistles....Ugh, I need to watch a movie or something with a little humor in it!
Don't forget that March is Colon Cancer Awareness month so "GET YOUR BUTT TO THE DOCTOR". Early detection saves lives.
I need to go now and work on my Bonnie J. Addario Lung Cancer Foundation "webisode". I'll tell you all about it once the project is finished. It's going to be exciting.
One last thing, I know the economy is tight this year but Relay for Life is only 2 months away and we are way below our goal. If you're interested in participating or donating (any amount counts) go to the link http://main.acsevents.org/site/TR/RelayForLife/RFLFY09GW?team_id=373324&pg=team&fr_id=14556 and show your support. Thanks in advance for your generosity.
Friday, March 27, 2009
So here I am, at the computer while the busy bees are making my house sparkle. I should have a party....No, then you guys would just dirty it up. :)
Nothing major planned again this weekend. We are still working on recuperating. I've found that by 3pm each day, I'm ready for a nap. For the past 3 days....I've slept from 3 to 7ish. Amy said she likes it when I take a nap because I'm a lot more fun after 7 o'clock. Usually, I doze off while we're having a conversation if I haven't taken a nap. Then she'll ask me about something the next day and I have no idea what she's talking about. That could just be because of old age...
Have a fabulous weekend.
Wednesday, March 25, 2009
This morning I had a wonderful massage, then Megan met me in Stanwood when my massage was over. We shopped around Stanwood, went to lunch, then she collected on the massage she got for her birthday in February. I came home, visited my dad, Jake and Theresa Haugstad (who brought dinner), then fell asleep on the couch for a couple of hours. I'm now full and rested :) and ready to watch Survivor.
Rick is starting to feel a little better, as am I.
Thanks for the delicious cookies, Bill and Jane. If they are as healthy as you said they are, we should be healed by tomorrow. :)
Tuesday, March 24, 2009
We were hoping to be back in time to attend our friends father's funeral this afternoon. I'm not sure how that will work out, but I'm sure they know we've been thinking about them.
I'd better get back upstairs with Rick, but I thought you might like to know how things are going.
Keep dreaming big,
Saturday, March 21, 2009
I appreciate all your love and concern and want to assure you that one of these days the "old Doreen" will be back. I'm not sure how long this recovery process will take but please be patient with me. If I haven't blogged and you're worried, then just send me an e-mail at firstname.lastname@example.org I promise to write back.
I love you more than all the flower bulbs sticking their little heads through the dirt. (I need to get well soon since spring is one of my favorite times of the year)
Dreaming Restless in Stanwood,
Friday, March 20, 2009
To be very honest with you, my mom is frustrated and tired of being sick. I know that she has been "sick" for nearly 3 years with Cancer but it is this recent battle with RSV that has pushed her to a whole new level. She is tired of having to call the Cancer Care Alliance to see what they have planned next, or how her scan results came back, or if she is allowed to be in the same room as my dad since she is not 100% sure that her virus is gone. She just wants them to be the ones making contact with her and keeping her in the loop rather than the other way around. After a tearful conversation with her oncologist this evening she seems to be more hopeful that he will help her through this rocky road that she is currently traveling. I think it helped her to be re-assured that he is always a phone call or email away.
When we left my parents house tonight my dad was asleep on the couch with a bad headache and my mom was getting ready to throw some dinner in the oven (thanks to the donated dinner from a Stanwood School District employee. Thanks!) We are hoping that some rest and relaxation over the weekend will help them feel a little bit better.
Dreaming of Cough-less nights,
Wednesday, March 18, 2009
I forgot to mention that the rest of my family is also on the mend. Rick s going back to work today, Jake still sounds congested (Megan caught whatever Jake had), Amy is still coughing but says she thinks she's getting better also. Luckily, Angie has taken really good care of herself (which is a hard thing to do at an elementary school) and she is feeling good. Just too much time on her hands to worry about us.
I'm on my way to my much needed massage....
Talk to you later.
Tuesday, March 17, 2009
After 10 days of feeling drained, wiped out, sicker than a dog....today I think I may have rounded the corner into a healthier life. I found that the past couple of weeks have been filled with fear, not just being sick. I guess I realized that what was happening to my body might be the beginning to the end of beating the odds. For nearly 3 years, I was a cancer patient who didn't look or act the part. I learned that RSV is not just a dyslexic class on RV'S. Now, I know that even sick people get "sick". I'm not sure how much longer I'll be under the weather but I do know that I'm making forward progress and this viral infection is nothing more than a bump in the road.
When you enter our house we have a basket filled with gloves, masks, bacterial cleaner but today we realized that there were no instructions once you entered. Pam, took it upon herself to make us a sign to help all of you out. I've attached of the poster on our door. Humor is still the best kind of medicine.
I'm sure there are times when you guys get sick of listening to me talk about my wonderful friends and family, but their love and kindness were a testament over these past couple of weeks. Without their strength and selflessness I'm not sure how I would have survived
Over the next couple of weeks I'm looking forward to working with Carol Lin and TulahHealth on webisodes for the Bonnie J. Addario Lung Cancer Foundation. Expect a lot of change in the world we once knew as Lung Cancer.
Tomorrow I'm finally going to make it in to the Wellness Center for a much needed massage. I'm sure by tomorrow I will be as good as new.
Rick and I have just crawled into bed with the hopes of getting a good night's sleep. Hope to talk to you again tomorrow.
Stay Healthy and Happy,
Big Dreamer Dor
Saturday, March 14, 2009
I plan on going home tomorrow, I promise to be on my best behavior, and keep my family safe from my germs.
I'll write more tomorrow and I'm sorry for the mix up from yesterday. Keep us in your prayers...we've got an epidemic going around the Schmitt house.
Love you more,
Friday, March 13, 2009
A lot of people have called and emailed about wanting to come to Seattle to "take a shift" with me but as much as I would love to see everyone, I don't want anyone else to be exposed to these germs. The doctors have told us that my chance of contaminating others lessens as my temperature goes down so I want to take a few more days to recover before I go home. I had an appointment today with the infectious disease team at the Seattle Cancer Care Alliance. I was feeling pretty cruddy at the time, so they had a chance to see me like I've been feeling everyday since Monday. During my appointment the doctors ran a new kind of chest x ray to see if they could find anything new bacteria growing. No answers yet. They put me on a nebulizer that seems to be doing some good.
Tonight I'm actually feeling pretty good.Rick woke up this morning with a sore throat. Angie jumped right on that and made him an appointment to make sure he didn't have RSV. We got a call tonight and he's safe. Now we just need to make sure he starts feeling better too.Cathy spent the day and night with me last night and today, now Kim Boyer tag teamed her out and will be spending the night, then Pam will be in Seattle to take over tomorrow. Ok, enough talk about sickness. Let's get back to having fun...I can't stay focused long enough to write any more so I'll have to say goodbye until tomorrow.
Love you more,
Wednesday, March 11, 2009
It has been a tough couple of days for all of us. All three of the kids spent a lot of time with me in the hospital on Monday and Tuesday so by the time we found out I had a contagious virus, it was too late to keep them out of harms way. Jake woke up this morning really sick. With him being a teacher and around germs all the time, it's hard to tell exactly where he got it, but I also can't rule out that he got it from me and I hate that. Jake is feeling a little better tonight so we are all hoping it was just a 24 hour flu bug.
I'm so thankful for my friends and family and all they've done for me these past few days. We have decided that we better "pick teams" for the next few days so we don't share this virus with Rick (or anyone else for that matter). The options are "Team Rick" and Team Dor" but nothing in between. It's silly for my germs to leave this condo. I'll learn more from the doctors on Friday about how long I should stay away from home. I just know that I'm already missing my Ricky's face and little bald head, and it's only Wednesday.
I love you more than all the times I've coughed over the past 4 days...boy, are you loved!
Tuesday, March 10, 2009
Mom called me this morning around 6:30 and she sounded great. I felt much more optimistic after the call. While mom continued to rest at UW with Cathy, I joined my dad at SCCA for his medical appointment and chemo. When his chemo started, he immediately fell asleep. I went over to the other hospital to check on my mom and I was shocked to see her looking so bad again. Her temperature was back up around 102 and she was struggling with her coughing.
The doctors seemed a little bit surprised by her symptoms because her blood work was within the normal range and her chest X-ray looked fine, but her coughing and fever were both unusual. After being in the room with mom all day the doctor's came in with the results of her blood work. They were in masks, rubber gloves, and protective gowns. They told us mom had a contagious virus called RSV. They made us put on the suits which we like to refer to as our "hazmat suits". Her virus is rare and usually only effects infants, elderly people, and people with compromised immune systems. As long as a person has a normally functioning immune system, they are unlikely to be effected by the RSV virus. We put on the suits like they told us to, but after cuddling with her for 6 or more hours in the ER last night and sitting next to her bed all day today, we have obviously been exposed to it.
I am attaching a few photos from this evening at the hospital. As you can see, Dor had a very supportive "Hazmat" team.
Monday, March 09, 2009
After a late night, mom woke up this moring feeling horrible. She spent all day in bed with Kathy by her side. As the day progressed she began feeling worse and worse, but since she's supposed to be having chemo tomorrow we were hoping she'd be able to make it through the day and wait until tomorrow to see the doctor. By about 5:30pm her fever hit 102 degrees and we all decided that mom couldn't wait anymore. Angie and Shannon are taking mom down to UW Medical Center and the film crew is shortly behind. I'm sure they had no clue what they were getting themselves in to when they called and said they wanted to do a story on our family. We always seem to be on a rollercoaster of emotions.
We'll fill you all in as we know more, but for now Dad and I are headed to be with mom at UW.
Praying for the best,
Friday, March 06, 2009
Wednesday, March 04, 2009
You all know me well enough to know that I'm having a fabulous time watching hours and hours of high school basketball. Only this time...it's different. Since Angie started officiating and Rick and I got sick, she has so badly wanted to be on the court as a referee at the State Tournament and for us to be around to see it. This morning as I sat in the stands watching my beautiful daughter with a whistle hanging out of her mouth, I got a little tear in my eye knowing that another dream came true. I'm not sure which of us was happier. She did an amazing job and we are so proud. She has another game tonight at 8:30 so I'd better get my game face on and head back over to the Tacoma Dome.
Monday, March 02, 2009
Yesterday was a fabulous day. We celebrated Amy, Angie and Megan's birthday with a nice dinner, lots of laughter, we played beauty shop (Angie needs to be "smokin' hot" for her state referee debut), and we finished the evening with cheesecake topped with fresh strawberries.
I'm so happy that we both have the week off from chemo. My body is aching more than usual from a build up from the drugs. I'm hoping to feel better in the next couple of days. I have lots of basketball to watch this week and I don't want to be whining about my knee the whole time.
I have some exciting news to share with you regarding "our story" that's being produced in the coming months. I don't have all the details, but you'll be the first to know as soon as I do.
I'd better go check on the soup I'm making for dinner.
Keep dreaming big,